Introduction
Ever since
I was a young man I have felt a persistent urge to tell
my polio story. The subject of my polio or disability
has never been addressed until now because I would never
engage in such a conversation. Finally during the year
2001, I decided that it was time to tell my story. I
went back in time to my childhood when I spent years
growing up in hospitals, my youthful years in school
and significant parts of my adult life right up to the
present date, 2004. Travelling back in time to my hospital
days was such an emotionally painful experience that
I had to put the project aside for two years. Slowly
my interest returned and this book is the result. Parts
one and two are about a period of history when I, like
many children in Canada and the United States, were
hospitalized for elective surgery to correct deformed
limbs. The second half of the book is about my adult
experiences living with polio and post polio. There
must be thousands of stories that should be told.
Remembering and reliving my time when hospitalized while
writing this book has been both a cleansing and healing
process. I try to remember the good times when we laughed
and played, and not to focus too much on the physical
pain that I endured. I can now recall my experiences
in hospital with emotional detachment, feeling less
pain for the child who was there.
Self-exploration was an important part of a counselling
course that I was enrolled in. During my studies I learned
that both the happy and the sad experiences while hospitalized
were important to the development of my personality.
By exploring my past I have been able to discover some
of my behavioral patterns, why I react or behave in
certain ways to certain situations. Why have I always
pushed myself so hard? Since I was a young boy physiotherapists
encouraged me to try hard, they would always say, "you
can do one more." They were motivating patients
to exercise hard to rebuild muscles that may have been
inactive for months due to surgery. I put this motivational
message into everything that I did. "I can do more."
I would tell myself. Often I felt as if I had not done
enough even when I was exhausted and had done more than
what was asked or expected. Observing one’s past
can expose many interesting behavioural traits.
Since being forced back into the world of the disabled,
writing has given me a sense of purpose. This book has
become an obsession for me to complete. I lie awake
at night thinking of past events and how to get them
down on paper in a chronological and meaningful way.
After recovering from being sick and left disabled from
the polio virus, like so many others I went on to compete
and perform well in the world of the able-bodied, only
to be forced back into the world of the physically disabled
because of a malady called post polio syndrome. This
story will give you some insight into the world of one
polio survivor. |